I did a previous blog post called Married To Epilepsy and had a comment how I wasn’t married to epilepsy it is my husband that has epilepsy – in many ways that’s correct; however there are times when the epilepsy feels like it is at the forefront. Over the last few days I have spent my time between home and the I.C.U at my Husbands side. He was admitted to the I.C.U after E.D. could not get the seizures under control.
My husband is the one that directly affects, yet it does indirectly affect me. when my husband is going through a bad bout then I’m the one that has to be there not only for him, but to make sure that our kids and the housework is not neglected.
So though someone diagnosed with epilepsy is the one directly affected, indirectly it also affects their loved ones. I know that what my husband goes through is extremely tough but what cannot be ignored is the affect it not only has on myself, but also on our children and family and friends.
My husband doesn’t like being labelled “an epileptic” so though I could have titled the blog post “Married To An Epileptic” – that would have been disrespectful to my husband. When things are going smoother, you could almost forget about the epilepsy and things could go smoothly for days – and then again there will be times when they are rough.
So I am married to Rob who has epilepsy but there times when it feels like I’m Married To Epilepsy.