Anxiety plays an underlying role in my life, when it does affect me it can seem serious, most of the time I can manage it and not allow it to affect my daily life. The epilepsy that affects my husband Rob can be a daily occurrence especially during the night, medication is helping him to live but the quality could be better, the only option he has left is surgical which is what is hopefully in the works.
The other week Rob went up to Auckland for a consultation with a Neurosurgeon. Due to the limited availability of flights he had to fly up the day before. That night I was missing him which is weird as when he’s been away for longer I normally wouldn’t miss him until the next day or so. During the day the possibility of him having neurosurgery had me feeling torn between being with him away from our kids or being with our kids but not by his side.
I was playing the “what if” game in my head which allowed anxiety to rear its ugly head. Having a husband who has a serious medical condition makes keeping the anxiety under control a bit harder, as there are more situations to worry about – especially when you have young kids; there are times when both parties need me to be there and because I can’t be in 2 places at once I have to be there for the party that needs me the most.
Rob seems to have a gift for minimalising big issues and exaggerating the smaller issues, whereas I’m the opposite, there are times when small issues are important in the grander scheme of things and there are times when bigger issues need to work themselves out and there’s nothing you can do about them, so it doesn’t pay to worry. However because of anxiety sometime worry is just part and parcel of the situation; for me there’s the anxious side and then there’s the rational side. In some cases the rational side can suppress the anxiety, and at other times it is anxiety that suppresses all rationality.
With everything Rob has to deal with, what with the epilepsy, medication and physical limitations I’m glad to know that anxiety isn’t on his plate – other than trying to help me through the anxiety I sometimes have to deal with. He does try to help but sometimes the only thing that gets me though it is time. Anxiety is not something I can just get over, and it feels very real. I’m thankful for the support of family and friends as they play a big part in my fight with anxiety. Rob doesn’t really understand how hard it is to fight anxiety sometimes, just as I don’t know what it’s like to have epilepsy
It’s the same throughout humanity; unless we are dealing with exactly what someone else is dealing with – or dealt with we will never completely understand what that person’s going through. People deal with their stuff in different ways, and if someone is having a hard time with something that someone else might find inconsequential then that person needs support not judgment.
Coming from a broken family my childhood was anything but carefree, there were some fun times and carefree times but it wasn’t a constant. As a child I guess I felt confused about why my parents fought, I mean at the time I probably thought that only children fight, it was just a part of having siblings. Now as a parent myself I understand that everyone argues; sometimes it means that love has gone but other times it’s just a clash of differing expectations/opinions. When differing personalities are joined, there are sure to be disagreements just as there would be in area of life.
As a mother I try my best to give my children a stress-free childhood however due to situations beyond my control I’m not sure how feasible it is for my children to have a completely stress-free childhood. I love my children beyond the beyonds and would give my life to protect them; unfortunately life itself is not carefree. With my husband, their dad, having epilepsy they are learning about compassion for others and that not everyone is “normal”. For my kids living with someone who has epilepsy will give them an experience of people with epilepsy more than what their peers may experience.
I myself have to deal with anxiety issues and try my best to protect my children when the anxiety overwhelms me as I want my children to be children as long as possible. I don’t want my children to grow up too fast as I did. It’s not fair on children to put adult problems on their little shoulders, for our littlies to worry about us adults when being a child in the 21st century can be difficult enough
Children that grow up in households that are far from stress-free may grow in ways that other children with easier lives may not. Though of course this is all relative, having a stressful childhood can also have detrimental effects on some children, I think a lot is determined on the personality of the child and whether that child can break through the negativity that he/she has had to live with. Some children may build “walls” to protect themselves and never know to break through, yet others may build “walls” but eventually allow the “walls” to weaken.
Everyone has different experiences as children and often that may determine how we are as adults, then again there are times when adults need to adapt to the world around them and if they can’t, they may find that life is more stressful than life is for others.
I did a previous blog post called Married To Epilepsy and had a comment how I wasn’t married to epilepsy it is my husband that has epilepsy – in many ways that’s correct; however there are times when the epilepsy feels like it is at the forefront. Over the last few days I have spent my time between home and the I.C.U at my Husbands side. He was admitted to the I.C.U after E.D. could not get the seizures under control.
My husband is the one that directly affects, yet it does indirectly affect me. when my husband is going through a bad bout then I’m the one that has to be there not only for him, but to make sure that our kids and the housework is not neglected.
So though someone diagnosed with epilepsy is the one directly affected, indirectly it also affects their loved ones. I know that what my husband goes through is extremely tough but what cannot be ignored is the affect it not only has on myself, but also on our children and family and friends.
My husband doesn’t like being labelled “an epileptic” so though I could have titled the blog post “Married To An Epileptic” – that would have been disrespectful to my husband. When things are going smoother, you could almost forget about the epilepsy and things could go smoothly for days – and then again there will be times when they are rough.
So I am married to Rob who has epilepsy but there times when it feels like I’m Married To Epilepsy.